By creator to www.ktvu.com
SAN JOSE, Calif. – A South Bay couple is in determined want for a dwelling kidney donor for his or her two-year-old daughter.
She was born with under-developed kidneys. The chances are in opposition to her as there’s a lengthy checklist of sufferers ready for an organ transplant in Santa Clara County.
“She acts blissful on a regular basis, she’s very outgoing, and really fearless,” mentioned Deanna Hernandez of San Jose.
On the surface, Nya and her twin sister, Amaya, each seem like typical two-year-old ladies. However Nya will not be.
“She is on a feeding machine 24 hours a day,” mentioned Mom Deanna Hernandez of San Jose. “She’s on over 10 drugs to maintain her numbers secure.”
When Nya was born, she had instant well being points. Docs quickly realized she had underdeveloped kidneys smaller than regular. Six months later, she was identified with persistent kidney illness which is a lifelong situation, in want of a kidney transplant.
“It’s been actually onerous on my household figuring out she’s suffered a lot since she’s been born,” mentioned Father Fabian Hernandez of San Jose.
Since December, Nya has been on the transplant checklist at Lucile Packard Kids’s Hospital at Stanford. It will be supreme to match her with a dwelling donor.
“I’ve seen the wait checklist for a kidney transplant in Northern California develop from possibly 5 years to now 9 to 10 years,” mentioned Sandy Andrada of Donor Community West. “What I’m seeing in little Nya’s household it’s heartbreaking and it’s what hundreds of households are experiencing. The truth is, 1,400 households are experiencing in Santa Clara County alone.”
Donor Community West mentioned the vast majority of the ready checklist in Santa Clara County is made up of Latino sufferers however Latinos donate at a low price.
“I’ve by no means seen tales of Latinos donating to different individuals,” mentioned Fabian Martinez.
Nya’s father will not be a match as a result of he’s not the proper blood sort. The donor must be O blood sort. Nya’s mom has medical points.
“Nya I’ve to soak up for bloodwork each month and he or she has to get so many vials taken out of her,” mentioned Deanna Hernandez.
The couple is holding onto hope they’ll discover a donor drawing power from Nya’s power. They hope sooner or later Nya will likely be wholesome like her sister and that by sharing their story, they can assist others.
“She by no means offers up, we received’t ever quit we’re going to proceed to struggle for her,” mentioned Deanna Hernandez.
If Nya doesn’t get a transplant quickly, she will likely be on dialysis. When you’d like to seek out out extra details about being a donor, go to Donor Network West or Nya’s transplant coordinator Gerri James at (650) 724-8236.
Azenith Smith is a reporter for KTVU. Electronic mail Azenith at firstname.lastname@example.org and comply with her on Twitter and Instagram @AzenithKTVU or Fb or ktvu.com
— to www.ktvu.com