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This story was written by La’Tanya Dandie, who’s the mom of Khalieghya, the liver transplant recipient.
Khalieghya Dandie-Evans is the chosen one. Because the 2020 Donate Life Float rider within the 131st Rose Parade in Pasadena on New Yr’s Day she is on the high of her world. The float the Richmond resident will experience in is known as “Mild within the Darkness.”
The float can be adorned with 1000’s of roses from all around the nation, every representing a person donor or transplant recipient, in addition to 44 memorial portraits manufactured from flowers of deceased organ, eye and tissue donors.
The title is acceptable given Dandie-Evans’ rocky begin in life. Born prematurely and recognized with Biliary Atresia — a illness that scars the liver and causes bile to construct up — Dandie-Evans confronted loss of life at 5 months previous.
Though she has no reminiscence of it, Dandie-Evans is accustomed to the story. She wanted a liver transplant with a purpose to survive. Her father matched, however he declined and different donors together with her blood sort had been uncommon. After lower than a month on the ready checklist for a transplant, Dandie-Evans had turn out to be so sick and weak that medical doctors warned her mom that they’d have solely hours earlier than she can be faraway from the recipient checklist.
Stricken with the thought and ache of dropping a baby La’Tanya went dwelling to debate the choice together with her different three kids, Kevin 11, Kristopher 10 and Kheyaira 5. However earlier than she might do it, she was woke up by an early morning name. A 4-year-old boy with the identical blood sort as Dandie-Evans had drowned in Fresno and was registered as an organ donor. “Please get again right here and assist us put together, “Little Khalieghya,” they suggested. That evening, Aug. 6, 2002, Dandie- Evans underwent a 12-hour transplant surgical procedure at Stanford’s Lucile Packard Kids’s Hospital.
Now a vigorous 17-year-old senior at Oakland Navy Institute who performs softball and different sports activities, Dandie-Evans however struggles together with her situation. She has hypertension, junior arthritis, listening to loss and dermatomyositis and takes 17 drugs twice a day to thwart organ rejection. Over time she has been hospitalized a number of occasions for reactions to drugs, kidney failure and a number of surgical procedures to take away her tonsils and adenoids and breast tumors attributable to the immunosuppressive drugs.
In her speech on the Richmond Historic Museum the place she acquired a Certificates of Recognition from Assemblywoman Buffy Wicks’ workplace, the Rose Parade honoree additionally instructed of her hopes: Regardless of lacking weeks of faculty, she’s on observe to graduate with honors in 2020 and has desires of working as a therapist for youngsters on the autism spectrum.
“I stay a contented, energetic life, I smile and inform corny jokes,” Dandie-Evans stated. “I obtained a second likelihood at life as a result of a household stated “Sure” (to registering their son as an organ donor).”
Having a transplant was not going to manage Khalieghya’s life. I didn’t know find out how to deal with her any otherwise than I handled my different kids. I didn’t give her excuses or any stops, and that’s what stored her alive, smiling, nicely and blissful.
Dandie-Evans desires to advertise organ donation particularly within the African American/Black group. She believes not sufficient Folks of Shade have any such dialog to turn out to be educated about saving lives.
“We simply don’t have sufficient individuals to say sure to donation,” stated Cathy Koubek of Donor Community West. “With the Rose Parade and the nationwide consideration, we hope individuals will actually take a second to consider this and make the choice to turn out to be a donor.”
Dandie-Evans is a residing instance of why individuals ought to register as organ donors, stated Koubek. As of July 2019, greater than 113,000 individuals had been on the nationwide organ transplant ready checklist, in line with organdonor.gov; 20 individuals die every day ready for an organ transplant.
— to postnewsgroup.com