By writer to armenianweekly.com
As their Armenian compatriots within the homeland battle for the survival of our nation, Sebouh and Annie Yepremian are waging their very own battle for the lifetime of their 13-month previous son Garen. Child Garen, as he’s affectionately identified, was born with finish stage power kidney failure and is in determined want of a kidney transplant.
When Annie was six months pregnant and eagerly awaiting the start of her second son, the household discovered that each his kidneys had been enlarged. Because the child’s kidneys continued to swell within the third trimester, Annie was transferred to the care of specialists, the place she and her husband acquired the reasonably reassuring information that their child’s kidney considerations might be resolved with a comparatively minor process instantly after start that will open the pathway between his kidneys and bladder. “However that’s not what occurred,” stated Annie ominously throughout an interview with the Armenian Weekly.
When her fluid ranges dropped, the medical doctors knew they must ship the child early. They prescribed steroids to extend his little lung capability and delivered him six weeks early on August 20, 2019. The following day, he was taken into surgical procedure the place medical doctors found that his kidneys had been past restore; tiny child Garen was going to require dialysis. Because the hospital in RI couldn’t present what their toddler son required for the dialysis, Sebouh and Annie had been instructed that Garen needed to be transferred to Boston Youngsters’s Hospital. “After which they’re speaking about transplant, and we’re shocked,” defined Sebouh. “In a single week, it was a lot to cope with and course of.”
Whereas the Yepremians had been studying concerning the plans for his or her new son, in addition they wanted to plot a care plan for his or her firstborn son. Annie and Ari, who was simply two-years previous on the time, moved in along with her sister in Massachusetts to be nearer to the hospital. Preparations had been made for Ari to attend an Armenian daycare at St. James Church with the household’s honest gratitude. Sebouh stayed behind in Rhode Island to proceed working in his family-run jewellery enterprise, heading to Boston commonly to be along with his household. Child Garen was within the hospital for about 4 months as medical doctors tried to enhance his kidney perform with drugs and remedy, in the end putting the required catheter in his abdomen for dialysis, together with a gastrostomy tube (g-tube) for his diet. Throughout this time, his dad and mom discovered methods to present his dialysis remedy at their house in RI which lasts 12 hours in a single day.
Child Garen’s each day care entails particular formulation preparation that features two totally different drugs to take away the potassium and phosphates, six further drugs, checking his weight, coronary heart price and blood stress each morning and night and speaking with the hospital to watch his “numbers.” Resulting from his situation and the accompanying nausea, Garen doesn’t eat strong meals. He receives diet via the g-tube, accepting solely water by mouth. “He’s very defensive along with his mouth as a result of it doesn’t make him really feel effectively,” stated Annie. The household is now working with an occupational therapist to introduce applicable meals. As a untimely child who needed to be in mattress for the primary 5 months of his life, Garen is delayed in bodily talents akin to crawling, so he additionally requires bodily remedy. As well as, the Yepremians’ little son has Wolff Parkinson White syndrome (an additional electrical pathway that causes a speedy heartbeat), found via common electrocardiograms (EKGs); this situation requires checking his coronary heart price each 4 hours now, together with doctor checks each six months.
As a result of COVID-19 pandemic, Annie has been offering a lot of his care herself as she stopped the visiting nurse who was serving to administer Garen’s weekly hemoglobin photographs and checking the catheter and g-tube in his little abdomen. On the similar time, Ari was house from daycare as a result of it had closed attributable to pandemic protocols. Since restrictions have lifted a bit, the Yepremians are awaiting the return of a specialised nurse to assist look after Garen.
Now, massive brother Ari is three-years previous and again in daycare. When requested how he has adjusted to his little brother’s arrival and sickness, each dad and mom enthusiastically expressed loving reward. “He’s simply unbelievable,” exclaimed Sebouh. “He’s clearly a product of my spouse’s upbringing,” he continued. Ari is a loving massive brother with a form nature, working to Garen’s rescue if he begins crying. “Don’t cry, child Garen. It’s okay,” he assures him. The household has a night routine as they put together their little son for his in a single day dialysis, and Ari participates within the nightly rituals.
As child Garen continues to develop and thrive in his household’s love, his determined want for a donor kidney grows with him. Very quickly he can be eligible for a kidney transplant. The Yepremians say a residing donor is preferable. Right here’s why: if the donor is deceased, Garen should endure this whole course of once more at across the age of 10 or 11, whereas if the donor resides he’ll possible have the ability to wait till he’s at the very least 20-years previous to endure the subsequent transplant course of, which is able to once more embody dialysis. “I don’t need him to should undergo all this once more at 10 years previous. It will likely be a lot worse,” stated Annie. “He is perhaps afraid and never need to do it.” Whatever the donor, Garen will should be on immunosuppressant drugs for the remainder of his life to stop rejection of the brand new kidney. Regardless of any medical restrictions attributable to transplant surgical procedure, he ought to have the ability to stay a standard life, even grow to be an athlete if he desires. “He ought to have a wholesome life, I suppose,” stated Annie hopefully.
The household is now reaching out to the neighborhood to search out an eligible kidney donor, an grownup as much as the age of 50 with blood sort A or O. Potential donors shouldn’t have any of the next well being considerations: diabetes, hypertension or on drugs for blood stress, hypercholesterolemia, weight problems (BMI have to be 30KG/m2 or much less), gastric bypass surgical procedure, historical past of most cancers within the final 5 years, bilateral or recurrent kidney stones, sure infectious illnesses akin to HIV an infection or hepatitis, critical psychiatric sickness or alcohol or substance abuse. Potential donors will first have to finish an utility via the Brigham and Girls’s hospital web site (child Garen’s dad and mom will present the hyperlink). If certified, the donor’s medical bills can be lined by Garen’s medical health insurance. donors can electronic mail Sebouh at firstname.lastname@example.org or Annie at email@example.com.
As they anxiously await information of an eligible donor, Sebouh and Annie proceed as trustworthy parishioners at Sts. Vartanantz Church in Windfall, expressing their appreciation to Rev. Fr. Kapriel Nazarian and “everyone who has reached out to us from day one from the neighborhood and our pals.” “We’re simply grateful for the outpouring of assist and encouragement,” expressed Sebouh, as Annie sighed within the background quietly hoping for that one heroic donor.
— to armenianweekly.com