By writer to infotel.ca
September 07, 2021 – 8:02 AM
A household in Kamloops has obtained devastating information about their four-year-old who has spent nearly all of her life on dialysis ready for a kidney.
Lindsey Backmeyer stated her daughter Ferris was born with a uncommon genetic dysfunction referred to as Mainzer-Saldino syndrome. The syndrome impacts her kidneys, liver and bones.
An antibody take a look at taken earlier this week reveals that Ferris has turn into extremely delicate and her immune system will not be functioning resulting from very excessive antibodies that developed since her first failed kidney transplant in March.
“It terrifies me within the season of a pandemic of a respiratory virus that my little one does not have any safety towards something,” Lindsey stated. “They’ll enhance immunosuppression to attempt to stop her antibodies from getting even increased. Her future is so extremely unsure. I’ve by no means felt extra assured in our choices to creating recollections our primary precedence. Every part must shift and her high quality of life will come above all the things else.”
Lindsey stated the aim is to get a kidney transplant for Ferris, however that the percentages should not in her favour. She requires a younger, feminine kidney of somebody with kind O or B blood. She presently has no kidney perform in any respect and hasn’t for over three years.
“From my understanding there’s a fancy calculation that appears in any respect the organs that had been donated previously 5 years throughout Canada and all age teams,” Backmeyer stated. “One p.c of these would have been a match for Ferris. I really feel shattered and it’s exhausting to breath.”
At this level there are not any plans for Ferris to be listed on a deceased donor registry, which implies that her second probability of a transplant will depend on a stay donor.
“She is on no record in any respect,” Lindsey stated. “I’m attempting to stay hopeful that the hero she desperately wants can be discovered. A profitable kidney transplant means life for our candy lady.”
Lindsey continues to unfold the phrase about her daughter’s want for a kidney on social media.
“It’s simply been so extremely overwhelming and the fixed emotions of battle or flight are sporting me down,” she stated. “Discovering this kidney is like discovering a needle in a haystack however I imagine it’s on the market. It’s so essential for us to actually embrace the place we’re at proper now as a result of the fact of our state of affairs is that that is seemingly the ‘good’, and I will not cease attempting to maintain it this fashion.”
Should you assume you possibly can assist Ferris name the Residing Donor Program at St. Paul’s Hospital in Vancouver toll free at 1-877-922-9822 or contact Lindsey Backmeyer on Facebook here.
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