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Little Addi has a new donor and transplant date, and her sights are set on ‘chocolate milk’

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    Townsville renal patients could wait for transplants if unvaccinated

    Townsville renal patients could wait for transplants if unvaccinated

    Wading River parents watch history repeat itself waiting for son’s heart transplant

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Little Addi has a new donor and transplant date, and her sights are set on ‘chocolate milk’

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Little Addi has a new donor and transplant date, and her sights are set on ‘chocolate milk’
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By writer to www.sudbury.com

One other kidney donor has come ahead to assist Addison Behrndt, a six-year-old Sudbury lady who has Sensenbrenner Syndrome, a particularly uncommon illness that has affected her organs. 

That is greater than welcome information for Addison, who’s needed to bear a sequence of setbacks on her approach to a kidney transplant. The perfect half for the little fighter? Chocolate milk. 

“She is wanting ahead to her new kidney so she will be able to drink as a lot fluid as she desires,” Addison’s grandmother, Andrea Behrndt, instructed Sudbury.com As Addison is barely allowed 900 millilitres of fluid per day (barely lower than 4 cups) and can’t course of potassium or phosphate, her food plan is restricted.  “She will’t wait to have as a lot chocolate milk as she will be able to and plenty of different issues she enjoys like bananas and smoothies,” she stated.

Although a donor for Addison came forward in late January, Addison’s kidney’s started to close down in February earlier than the surgical procedure may occur and her blood strain rose considerably. She was lower than the pressure of the transplant and so docs felt it might be finest to take away her kidneys and put her on dialysis. This may assist get her into higher form for a now-postponed transplant surgical procedure. Nevertheless, in May, Addison suffered a gastro-intestinal bleed and since she wanted a blood transfusion, her physique grew antibodies and he or she was not appropriate with the donor.

However Addison now has one other probability.  

“Addi has a transplant date of Oct. 14,” stated Berhndt. “She is doing nicely since being residence from Sick Children in June.” 

Behrndt stated Addison’s blood strain has normalized for a power kidney illness affected person and he or she is dealing with her dialysis nicely.  

“She has had some minor hiccups however all in all she is unbelievable going into transplant,” she help. “The docs and her crew at Sick Children are completely satisfied along with her progress and are simply attempting actually laborious to maintain her in tip high form going into the transplant.”

The transplant is not going to be straightforward, not for Addison, and never for her household. “We’re getting ready as soon as once more to quickly relocate to Toronto the place Addi and her mother Emma can be dwelling wherever from 3-6 months relying on how issues go.” 

Behrndt, often known as “Annie” to her granddaughter, will spend a month with them after surgical procedure after which commute from Sudbury on weekends.

It’s a expensive and extremely crucial endeavour, and that’s why a household buddy started a GoFundMe page for Addison, with $16,385 raised of a $50,000 purpose. There’s additionally the An Army for Addison Fb group, and you might acknowledge Addison from Sudbury.com’s Acts of Kindness. You’ll be able to see that particular shock here.

The cash raised will assist cowl the price of these bills, in addition to the sudden wants that cropped up throughout Addison’s early-year setbacks. 

Behrndt stated that the household can’t thank the donor sufficient. “We’re very grateful for our donor, a stranger in our group who has unselfishly chosen to share a kidney with our candy lady. Phrases can not categorical our gratitude and we are going to by no means be capable of thank them sufficient.” 

And although they’re all “scared, nervous and excited,” Behrndt stated they’re very a lot wanting ahead to Addison having a extra typical childhood.

“We’re wanting ahead to having our fun-loving, full-of-life little Addi again to 100 per cent so she will be able to reside a traditional lifetime of a 6-year-old, or as near regular as potential,” she stated.

— to www.sudbury.com

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