By creator to www.sudbury.com
A kidney donor was discovered for Sudbury’s Addison Behrndt, however then she suffered a gastro-intestinal bleed after having her kidneys eliminated in February, and since she wanted a blood transfusion, her physique grew antibodies making her incompatible together with her donor
A younger Sudbury woman nonetheless desperately wants a kidney donation after surprising problems arose when her kidneys have been eliminated in February.
Addison Behrndt, 6, has Sensenbrenner Syndrome, an especially uncommon illness that has affected her organs.
Sudbury.com introduced you the story of Addison in December final yr when she was featured as a recipient of our 12 Days of Kindness marketing campaign.
In January, a match was found for Addison. The household travelled to Sick Children Hospital on Jan. 24, however the transplant by no means occurred.
“There have been a number of setbacks, and what we thought was going to be a clean transplant journey has become a really bumpy curler coaster experience for ever and ever,” stated Addison’s grandmother, Andrea Behrndt.
Addison suffered a gastro-intestinal bleed after having her kidneys eliminated in February, and since she wanted a blood transfusion, her physique grew antibodies and she or he was not suitable together with her donor.
“So we misplaced our donor,” stated Andrea.
She and Addison’s mom, Emma, realized to do peritoneal dialysis in order that they might go residence and await a kidney. After virtually three months of being in Toronto, they have been all capable of return residence on April 17.
The return was short-lived, although, solely two days, in reality.
“Due to her tremendous hypertension, she was airlifted again to Sick Children on April 20,” stated Andrea. “She was very sick and her blood strain precipitated her to have a number of seizures.
“We thought via that week that issues have been managed, however on April 24, she suffered one other seizure at Sick Children and she or he spent virtually two weeks within the ICU.”
Addison, mother and grandma are nonetheless at the moment in hospital at Sick Children. At this level, Addison will not be even steady sufficient for transplant. She is on a number of blood-pressure drugs and anti-seizure drugs.
Andrea has taken a depart from work to be with Addison and Emma.
“We’ve been staying at a lodge as a result of we actually do not have a plan proper now for Addison,” she stated. “It’s mainly day-to-day.
“It is very irritating and exhausting, and we aren’t even near transplant.”
She stated work has began on one other potential donor, however because of the COVID-19 pandemic, issues will not transfer as shortly as they usually would.
“We should always know by the tip of the month if that particular person is a match or not,” stated Andrea. “However proper now it is all up within the air.”
A GoFundMe campaign continues to lift cash for Addison and her household as they await a brand new kidney. The aim is to lift $50,000. Thus far, $13,930 has been raised.
“Addi has been a trooper via all of this,” stated Andrea. “She is resilient and powerful, and she or he retains us all on our toes. She is a little bit of a star right here on 6A at Sick Children.”
They really admire the funds being raised, she stated.
“It is very useful to know we’ve that cash. As everyone knows, funds are irritating sufficient as it’s, however when all this occurs, it turns into extra. We tried to not contact an excessive amount of of that cash till transplant, however this setback has precipitated us to want to make use of it.”
— to www.sudbury.com