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They consider a coronary heart transplant might save her life, however as a result of there may be so little analysis on the situation, they have been turned down.
SLIDELL, La. — A 2-year-old lady from Slidell might not survive by means of the month if she would not get a brand new coronary heart. Her mother and father wish to share her story to hopefully discover somebody with solutions and lift consciousness about her extraordinarily uncommon medical situation.
LeAnna Brown whose third birthday is that this month, has spent extra time in a hospital than not. Now her mother and father are left unsure whether or not she’ll see that third birthday.
“She’s preventing,” her mom Ashley Mitchell stated. “Each time she will get sick, even when it is a small virus, it is at all times worse for her so this final time she obtained sick, simply pushed her coronary heart over the sting.”
At one month outdated, LeAnna was identified with a uncommon metabolic dysfunction that is inflicting coronary heart failure. It is known as A number of acyl-CoA dehydrogenation deficiency (MADD). Mitchell explains that her daughter’s physique cannot break down fat and proteins so that they retailer elsewhere like her coronary heart.
“The issue we’re working into now could be discovering a hospital that will probably be keen to no less than attempt as a result of there’s not sufficient info on her situation,” Mitchell stated. “No one has ever had a transplant together with her situation.
She and LeAnna’s father, Jason Brown, consider a coronary heart transplant might save her life, however as a result of there may be so little analysis on the situation, they have been turned down.
“That is what she wants, however she’s been turned down by three hospitals now. We’re looking for someone, even when not for the transplant, even when its someone who makes a speciality of metabolic problems who can scale back the scale of her coronary heart, take away the trauma, there may be simply not lots of analysis in any respect,” Mitchell stated.
Now, docs are telling the household LeAnna’s coronary heart might not final greater than one other two weeks.
“Mainly docs are telling us if no different hospital picks her up, we are going to simply make her comfy. We are able to deliver her sisters in to lastly be capable of see her,” Mitchell stated in tears.
Now they wait, pray, and share their story, hoping for the prospect to see their little lady attain her third birthday.
“I have been there since she was born, I by no means miss something, solely factor I ask is give my daughter a preventing probability,” Brown stated.
LeAnna’s ICU nurse created her a Go Fund Me account to boost consciousness and monetary help for the household.
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