By writer to pittsburgh.cbslocal.com
PITTSBURGH (KDAK) — For one native lady ready for a coronary heart transplant, the stay-at-home order from Gov. Tom Wolf has been particularly arduous.
Lily was born with a coronary heart syndrome and a uncommon neurological dysfunction.
Now her dad is battling how one can steadiness her care with considerations in regards to the coronavirus.
“Generally, you don’t get a lot sleep. When you’re sick, you don’t get to put down,” stated Cliff Ayres, Lily’s father.
Ayres is a single father in Washington County.
He says he’s getting much less relaxation for the reason that outbreak as a result of he fears Lily’s signs are worsening.
“She has a valve that’s leaking actual unhealthy,” Ayres stated.
These issues would usually trigger him to take Lily to their clinic. However within the midst of the outbreak, he now has to steadiness her medical wants with defending her from potential publicity to the virus.
“We’re making an attempt time hold our sufferers from touring forwards and backwards to Kids’s Hospital, simply to restrict their publicity,” stated Dr. Shawn West, a pediatric heart specialist at Kids’s Hospital.
Lily’s physician additionally put her on oxygen 24/7 as a option to handle her signs while not having to go away residence.
Ayres says telemedicine check-ins together with her medical workforce have additionally helped. However all of those coronavirus precautions add much more stress to caregivers.
“All I do is fear,” Ayres advised KDKA Information.
“Cliff has executed an excellent job elevating Lily and holding her as wholesome as she will be able to at residence,” stated Dr. West, one in all Lily’s medical doctors.
Lily’s dad says he’s doing all he can to climate the coronavirus storm and hold Lily wholesome as a result of in any other case, he fears the worst.
“If a coronary heart was to return accessible, she wouldn’t be capable to take the guts as a result of she’d be too sick,” stated Ayres.
Lily has been on the transplant checklist for over two years.