By writer to www.the-messenger.com
Alicia Parish has been in a battle for her life for a number of years.
In 2018, she was identified with a liver illness often called Hepatocellular Carcinoma (HCC).
“The one identified treatment for Hepatocellular Carcinoma is a liver transplant,” stated Eva Renfro, Alicia’s sister.
Alicia, who lives in Madisonville, went to the physician to look into extreme migraines she had been having, whereas on the lookout for the reason for the migraines the docs discovered tumors in her liver. She beneath went surgical procedure to take away the tumors from her liver.
“They’d eliminated a lot of the tumor, however once they have been in there they observed that she had a number of different tumors they usually have been too quite a few to take away all of them, so they simply sewed her again up,” stated Brenda Parish, Alicia’s mom.
The docs instructed them the best choice to take away the remainder of the tumors was TheraSpheres, the place they might use radiation on beads and stick them within the liver to connect the tumors immediately. The radiation was profitable, but it surely prompted extreme harm to her liver.
“They have been hoping that she would be capable to rebound from the radiation and that her liver would be capable to regenerate, however to date her liver hasn’t regenerated,” stated Brenda. “That was once we realized she must have a liver transplant.”
Alicia’s final radiation remedy was July 2019. In January 2020, they have been going to the College of Louisville Hospital for remedy, however the household stated Alicia was not getting the assistance she wanted.
“The physician got here in and stated, ‘I didn’t anticipate to see you alive’,” stated Renfro. “That simply shocked us.”
Brenda stated UofL wouldn’t even speak to them a couple of liver transplant. Finally, the household was referred to Vanderbilt College by Alicia’s major physician. Vanderbilt additionally instructed them they couldn’t do a liver transplant and that Alicia’s greatest and final probability was the Mayo Clinic.
“They have been going to switch her from Vanderbilt to Mayo, however the price of flying her there was so costly that they stabilized her and we introduced her residence considering that we might get an appointment instantly. In fact, it didn’t occur that manner,” stated Brenda.
The Mayo Clinic stated the price for a liver transplant and the care after could be between $25,000 to $30,000. Brenda stated it was complicated attempting to get an appointment as a result of it gave the impression of they wouldn’t even make an appointment for Alicia till that they had the complete quantity, however after speaking they realized the appointment might be made.
“It is rather like we’ve got battled and battled attempting to get her a liver,”
An appointment has been arrange on the Mayo Clinic for Oct. 12-16 to run exams to see if Alicia is eligible for a transplant. Brenda stated there are plenty of components that go into figuring out eligibility — like age, well being situation and the way properly the exams come out.
“They stated by Oct. 16, they need to be capable to inform us if she is eligible or not,” Brenda stated.
As soon as they came upon there was a chance they would want to journey to Arizona. So a pal of Alicia’s, Katie Gamblin, arrange a GoFundme web page to assist elevate cash.
“It was one thing we had talked about earlier than and none of us actually wished to try this,” stated Gamblin. “We knew she would want cash for motels and journey.”
The unique quantity was $3,000 to assist pay for journey, motels and extras. As soon as they acquired the quantity from Mayo they raised the aim to $30,000.
“If she will get the transplant, that (quantity) can pay for the surgical procedure and the remedy and care a 12 months after,” stated Gamblin. “That’s one thing we don’t should get like proper manner.”
Alicia’s household stated the very best medication and help getting her by way of this has been laughter and her mates. Renfro stated a lot of Alicia’s mates are like household.
“If Alicia is craving one thing, you possibly can put out an APB on Fb and anyone will convey it over her,” stated Gamblin.
Alicia is a part of a neighborhood band often called Pat Harvey and the Wallbangers, who’ve been very supportive of her throughout this time. Renfro stated that they had a fundraiser in March to boost cash for medical and on a regular basis wants.
“Her love for individuals and peoples’ love for her has been the very best treatment for her,” stated Renfro.
Each mother and sister have stopped working to handle Alicia since she has misplaced energy after the therapies and infrequently will get confused when her ammonia ranges are too excessive. Renfro has even moved in with Alicia to be there at evening, whereas Brenda helps in the course of the day.
If Alicia just isn’t eligible for a liver transplant then all Brenda and Eva will likely be doing is retaining her comfy. Eva stated she observed that if Alicia can’t get the transplant then the gofundme will assist pay for funeral prices.
“Alicia, she is a prime performer in music, In radiation, she is exceeding docs expectations, so she has already had some miracles occur,” stated Renfro.
Brenda wished to thank everybody who has supported and helped Alicia throughout this time.