• Latest
  • Trending
  • All
  • Transplant
  • Dialysis
  • Donation
Front Royal family thankful for 9-year-old’s new liver | Winchester Star

Front Royal family thankful for 9-year-old’s new liver | Winchester Star

Lalu The Mastermind Of Oppn Unity Plan? | Patna News

Lalu The Mastermind Of Oppn Unity Plan? | Patna News

Huron Plainsman | Noon Lions Club donates toward HRMC dialysis expansion

Huron Plainsman | Noon Lions Club donates toward HRMC dialysis expansion

Strabane man Gary’s running journey allows him to make life saving kidney donation to sister

Strabane man Gary’s running journey allows him to make life saving kidney donation to sister

Organ donation campaigner Dáithí Mac Gabhann granted freedom of Belfast

Organ donation campaigner Dáithí Mac Gabhann granted freedom of Belfast

On A Positive Note: Local family waiting on living kidney donor

On A Positive Note: Local family waiting on living kidney donor

Lung transplant- DR Roopam Sehjal ( UK) , DR Srinivas Rajagopala /Dr AN Aggarwal ( HOD pulm PGI chd

Lung transplant- DR Roopam Sehjal ( UK) , DR Srinivas Rajagopala /Dr AN Aggarwal ( HOD pulm PGI chd

26-y-o Jamaican policewoman in need of liver transplant | News

26-y-o Jamaican policewoman in need of liver transplant | News

Delaware man is first Penn Medicine patient to receive robotic kidney transplant

Delaware man is first Penn Medicine patient to receive robotic kidney transplant

District Hospital Mangan opens dialysis unit, providing relief to kidney patients

District Hospital Mangan opens dialysis unit, providing relief to kidney patients

6 New Virginia Laws That Take Effect July 1 and How They Affect You

6 New Virginia Laws That Take Effect July 1 and How They Affect You

An Iowa woman’s surprising connection to her kidney donor

An Iowa woman’s surprising connection to her kidney donor

Seeking Meaningful Work, Chinook Therapeutics CEO Takes on Kidney Disease

Seeking Meaningful Work, Chinook Therapeutics CEO Takes on Kidney Disease

  • Privacy Policy
  • Terms and Conditions
  • About Us
  • Contact Us
Sunday, June 4, 2023
Transplant News
No Result
View All Result
  • Home
  • Transplant
    • All
    • Kidney Transplant
    Lalu The Mastermind Of Oppn Unity Plan? | Patna News

    Lalu The Mastermind Of Oppn Unity Plan? | Patna News

    26-y-o Jamaican policewoman in need of liver transplant | News

    26-y-o Jamaican policewoman in need of liver transplant | News

    Delaware man is first Penn Medicine patient to receive robotic kidney transplant

    Delaware man is first Penn Medicine patient to receive robotic kidney transplant

    Seeking Meaningful Work, Chinook Therapeutics CEO Takes on Kidney Disease

    Seeking Meaningful Work, Chinook Therapeutics CEO Takes on Kidney Disease

    Kidney Walk in Prince George goes this Sunday, June 4

    Kidney Walk in Prince George goes this Sunday, June 4

    Mother of 8 left homeless as daughter battles kidney failure

    Mother of 8 left homeless as daughter battles kidney failure

    Serving patients with care in Indonesia

    Serving patients with care in Indonesia

    Bea Santiago shares journey as kidney disease survivor

    Bea Santiago shares journey as kidney disease survivor

    Hansa announces first patient dosed with imlifidase in a global pivotal phase 3 Trial in anti-glomerular basement membrane disease

    ProKidney to Participate in Fireside Chat at the Jefferies Healthcare Conference

    Former Northwestern nurse and patient advocate Christine Hernandez is looking for a kidney. Now the mother of 4 has to advocate for herself.

    How a liver transplant gave this Gainesville wedding painter a second chance to ‘live every moment to the fullest’

  • Donation
    • All
    • Kidney Donation
    • Liver Donation
    • Organ Donation
    Strabane man Gary’s running journey allows him to make life saving kidney donation to sister

    Strabane man Gary’s running journey allows him to make life saving kidney donation to sister

    Organ donation campaigner Dáithí Mac Gabhann granted freedom of Belfast

    Organ donation campaigner Dáithí Mac Gabhann granted freedom of Belfast

    6 New Virginia Laws That Take Effect July 1 and How They Affect You

    6 New Virginia Laws That Take Effect July 1 and How They Affect You

    Herald staff wins 12 Keystone Media Awards | News

    Herald staff wins 12 Keystone Media Awards | News

    Brecksville man celebrates life with nephew who became his living donor

    Brecksville man celebrates life with nephew who became his living donor

    Syed Measure, To Expand Paid Sick Leave For Organ Donors, Passes Legislature

    Syed Measure, To Expand Paid Sick Leave For Organ Donors, Passes Legislature

    Penn Med opens new living organ donor center

    Penn Med opens new living organ donor center

    Key Findings from TMR Study

    Key Findings from TMR Study

    Record number of kidney transplants at Malaga hospital

    Record number of kidney transplants at Malaga hospital

    Davis announces organ transplant and food assistance programmes during budget debate

    Davis announces organ transplant and food assistance programmes during budget debate

  • Dialysis
    Huron Plainsman | Noon Lions Club donates toward HRMC dialysis expansion

    Huron Plainsman | Noon Lions Club donates toward HRMC dialysis expansion

    District Hospital Mangan opens dialysis unit, providing relief to kidney patients

    District Hospital Mangan opens dialysis unit, providing relief to kidney patients

    Value-based Contracts Can Help Align Incentives in Dialysis

    Value-based Contracts Can Help Align Incentives in Dialysis

    Letter: Dialysis patient given cold shoulder by politicians

    Letter: Dialysis patient given cold shoulder by politicians

    University of Utah closing kidney clinics in Southern Utah, Mesquite, but dialysis centers will remain – St George News

    University of Utah closing kidney clinics in Southern Utah, Mesquite, but dialysis centers will remain – St George News

    Here’s Why You Should Retain DaVita (DVA) Stock for Now – June 1, 2023

    Here’s Why You Should Retain DaVita (DVA) Stock for Now – June 1, 2023

    Soon, PMC dialysis centres for Hep B, C & HIV-AIDS patients | Pune News

    Soon, PMC dialysis centres for Hep B, C & HIV-AIDS patients | Pune News

    Hansa announces first patient dosed with imlifidase in a global pivotal phase 3 Trial in anti-glomerular basement membrane disease

    Hansa announces first patient dosed with imlifidase in a global pivotal phase 3 Trial in anti-glomerular basement membrane disease

    5-month-old Idaho baby on dialysis will soon need kidney transplant

    5-month-old Idaho baby on dialysis will soon need kidney transplant

    The Donate Life Run/Walk Goes Virtual to Celebrate 18 Years of Inspiring Local Communities to Donate Life

    Akebia Therapeutics (AKBA) Announces FDA Provides Path Forward for Vadadustat

  • Donor
    • All
    • Kidney Donor
    • Organ Donor
    On A Positive Note: Local family waiting on living kidney donor

    On A Positive Note: Local family waiting on living kidney donor

    An Iowa woman’s surprising connection to her kidney donor

    An Iowa woman’s surprising connection to her kidney donor

    Cobb in search of kidney transplant | Features

    Cobb in search of kidney transplant | Features

    National Kidney Foundation Appoints Former U.S. Congresswoman Jaime Herrera Beutler to National Board of Directors

    National Kidney Foundation Appoints Former U.S. Congresswoman Jaime Herrera Beutler to National Board of Directors

    ‘We said our ‘see you laters:’ Ga. high school football player who collapsed becomes organ donor – 95.5 WSB

    ‘We said our ‘see you laters:’ Ga. high school football player who collapsed becomes organ donor – 95.5 WSB

    National Kidney Foundation Appoints Walmart Chief Medical Officer Dr. Wigneswaran to National Board of Directors

    National Kidney Foundation Appoints Walmart Chief Medical Officer Dr. Wigneswaran to National Board of Directors

    “We’re always together”: Selena Gomez Reveals Her ‘Throuple’ Threesome With Brooklyn Beckham and Nicola Peltz

    “We’re always together”: Selena Gomez Reveals Her ‘Throuple’ Threesome With Brooklyn Beckham and Nicola Peltz

    Temple student in need of kidney donor uses social media to share information

    Temple student in need of kidney donor uses social media to share information

    Kidney donor inspires others with hiking challenge

    Kidney donor inspires others with hiking challenge

    Keller Man Hopes to Find a Living Kidney Donor – NBC 5 Dallas-Fort Worth

    Keller Man Hopes to Find a Living Kidney Donor – NBC 5 Dallas-Fort Worth

  • Editor’s Pick
  • Videos
    Lung transplant- DR Roopam Sehjal ( UK) , DR Srinivas Rajagopala /Dr AN Aggarwal ( HOD pulm PGI chd

    Lung transplant- DR Roopam Sehjal ( UK) , DR Srinivas Rajagopala /Dr AN Aggarwal ( HOD pulm PGI chd

    Hitting the reset button: Achieving cost savings and standardization in dialysis

    Hitting the reset button: Achieving cost savings and standardization in dialysis

    Aug 13, 2021 ACIP Meeting – Welcome & Coronavirus Disease 2019 (COVID-19) Vaccines

    Aug 13, 2021 ACIP Meeting – Welcome & Coronavirus Disease 2019 (COVID-19) Vaccines

    Liver Dialysis or MARS (Molecular Adsorbent Recirculating System)

    Liver Dialysis or MARS (Molecular Adsorbent Recirculating System)

    Why is Liberia the World's most important flag state?

    Why is Liberia the World's most important flag state?

    Will the vaccine protect dialysis patients if they get COVID-19? | National Kidney Foundation

    Will the vaccine protect dialysis patients if they get COVID-19? | National Kidney Foundation

    Applying Satellite Data for Public Good

    Applying Satellite Data for Public Good

    Parents UPSET at Mishandling of Fragile Bag with Son’s Dialysis Machine | Airline | A&E

    Parents UPSET at Mishandling of Fragile Bag with Son’s Dialysis Machine | Airline | A&E

    DIY transforma unos PANTALONES en OVEROL/BRAGA😱

    DIY transforma unos PANTALONES en OVEROL/BRAGA😱

Transplant News
Home Transplant

Front Royal family thankful for 9-year-old’s new liver | Winchester Star

in Transplant
Front Royal family thankful for 9-year-old’s new liver | Winchester Star
491
SHARES
1.4k
VIEWS
Share on FacebookShare on Twitter

By writer to www.winchesterstar.com

A neighborhood 9-year-old is getting one other probability at life following a profitable liver transplant at Kids’s Hospital of Philadelphia.

Mason Langlais, a second grader at Ressie Jeffries Elementary College in Entrance Royal, was identified with dyskeratosis congenita, an extremely uncommon genetic illness that impacts about one in 1,000,000 individuals and causes bone marrow failure. Mason got here residence Monday and is doing properly recovering from his Oct. 30 process.

“[It’s] an enormous reduction, in fact, with what he has,” stated his mom, Jennifer Langlais. “We’re by no means out of the woods with that.”

Mason’s new liver was his second transplant, his mom stated. In 2017, he had a bone-marrow transplant.

“So we’ve had two second probabilities at life,” she stated.

“We’re shopping for extra time with these organ transplants,” she defined.

“He has massive plans for his future. I hope that he can expertise a few of these issues.”

Mason is the eighth dyskeratosis congenita affected person to bear a liver transplant and solely the second amongst pediatric sufferers, his mom stated.

Though few docs have seen such sufferers, Mason was lucky that Inova Fairfax’s Dr. Marshall Schorin, who focuses on pediatric hematology/oncology, acknowledged the early signs.

“Fortunately, our physician had seen this in a single different affected person in his profession,” Langlais stated.

Most individuals with the sickness go undiagnosed for some time, she stated, however Mason was identified in three months.

Mason was born with the illness and identified when he was 3, his mom recalled.

He had dystrophic nails, pale pores and skin and bruising, she stated. By means of a blood check, they discovered he had aplastic anemia, which occurs when the physique isn’t producing sufficient new blood cells.

After present process gene panel testing to search out out what was the reason for the aplastic anemia, they discovered he had a mutation within the TINF2 gene. This leads to shortened telomeres, that are the protecting ends of chromosomes.

Telomeres shorten as you age, Langlais defined. However due to her son’s situation, she stated his telomeres had shortened a lot that he mainly had the physique of an aged man.

With shortened telomeres comes larger danger of organ failure and a number of cancers, she stated.

“That’s basically what’s taking place right here,” she stated.

For a 12 months earlier than his bone marrow transplant, Mason underwent weekly blood transfusions “to maintain him sustaining life” till the household may get him a transplant on the Stem Cell Transplant Heart at Dana-Farber/Boston Kids’s Most cancers and Blood Issues Heart in an try to repair the bone marrow failure.

Below the care of hematologist Dr. Suneet Agarwal, co-program chief for the Stem Cell Transplant Heart, Mason was a part of a brand new scientific trial to have the transplant with out the standard chemotherapy or radiation as a result of that may hurt the lungs and different cells in sufferers who’ve DC. As an alternative, they used a reduced-intensity conditioning, his mom stated.

Agarwal can be a medical advisory board member of Workforce Telomere, a affected person advocacy group that Langlais joined to share data with individuals all over the world who’ve a member of the family with DC.

After they discovered Mason would want a brand new liver, Langlais stated they’d him on each listing as of June 9. She was examined to see if she may donate a portion of her liver, however his medical crew wished him to have an appropriately sized liver that will develop with him.

In the long run, Mason obtained a transplant from a 20-year-old whose liver additionally helped a second affected person.

Langlais hasn’t met the donor’s household but however stated there’s a course of for connecting donors’ households with the sufferers they save.

She additionally needs to nonetheless be a residing donor for somebody.

“I’m hoping I’ll be capable of give again in that approach,” she stated.

Along with her husband, Patrick, 32, and two different kids — daughters Jillian, 14, and Wynslie, 16 months — Langlais stated she’s grateful to the Entrance Royal group that has been so supportive throughout their journey.

“Us having the ability to share our story, we weren’t given a alternative with this and so it’s important to make the perfect you may,” she stated. “Sharing it with individuals, perhaps they’ll see how lucky they’re to have well being and never have to fret about issues like this with their kids.”

A GoFundMe hyperlink arrange by a household good friend at gofundme.com/f/langlais has thus far raised over $11,000 to provide the household “a brief residence base whereas Mason receives his new liver and associated therapies at CHOP.”

The household has additionally benefited from group help, together with a fundraiser in Could hosted by Ressie Jeffries that raised $12,000.

With “the help of the group that now we have had,” Langlais stated she needs to specific “how grateful we’re to see everybody come collectively and help us.”

“We attempt to do thank yous as we go,” she stated.

— to www.winchesterstar.com

Share196Tweet123
Previous Post

DIALYSIS NURSE DAY IN THE LIFE: A Conversation Just For You

Next Post

SC woman in dire need of living kidney donor

Next Post
SC woman in dire need of living kidney donor

SC woman in dire need of living kidney donor

Editor's Pick

Tom Brady Continues to do His Part in Saving Lives
Editor's Pick

Tom Brady Continues to do His Part in Saving Lives

Celebrated in April each year, National Donate Life Month is an entire month of local, regional and national activities to...

More in need of organ transplants seek their own donors

More in need of organ transplants seek their own donors

San Francisco police officer donates kidney to save a stranger

San Francisco police officer donates kidney to save a stranger

Tom Brady Helps Lexington Mom Get New Kidney

Tom Brady Helps Lexington Mom Get New Kidney

Woman Who Underwent Historic Double Transplant Surgery To Get New Kidney

Woman Who Underwent Historic Double Transplant Surgery To Get New Kidney

Patriots’ Tom Brady on Mission to Help Mentor

Tom Brady honors mentor with donation to local organ transplant organization

Tom Brady honors mentor with donation to local organ transplant organization

Oahu woman gives priceless Thanksgiving gift

Oahu woman gives priceless Thanksgiving gift

Kidney donor surprises Long Island recipient with visit

Kidney donor surprises Long Island recipient with visit

People Turn Online To Find Organ Matches

People Turn Online To Find Organ Matches

Local family searching for a kidney donor

Local family searching for a kidney donor

New England Patriots Tom Brady Helps To Save The Life Of A Woman Needing A Lifesaving Kidney Transplant

New England Patriots Tom Brady Helps To Save The Life Of A Woman Needing A Lifesaving Kidney Transplant

Transplant News

Copyright © 2022 All rights reserved.

Navigate Site

  • Privacy Policy
  • Terms and Conditions
  • About Us
  • Contact Us

Follow Us

No Result
View All Result
  • Home
  • Transplant
    • Kidney Transplant
  • Donation
    • Kidney Donation
    • Liver Donation
    • Organ Donation
  • Dialysis
  • Donor
    • Kidney Donor
    • Organ Donor
  • Videos
  • Editor’s Pick

Copyright © 2022 All rights reserved.