NEW YORK, Sept. 16 (TNSPPX) — The Nationwide Kidney Basis issued the next information launch:
Advocates from kidney organizations across the nation will converge nearly on September 16th for conferences with their Congressional delegations to encourage motion for kidney illness on the seventh Annual Kidney Affected person Summit. Initially scheduled as an in-person Summit to be held within the nation’s capital final March, attributable to COVID-19 the occasion was rescheduled for this week and can be held nearly. The occasion, led by the Nationwide Kidney Basis (NKF), brings collectively members of the NKF patient-based Kidney Advocacy Committee and advocates from the Alport Syndrome Basis, IGA Nephropathy Basis of America, and PKD Basis. As COVID-19 creates extra kidney sufferers, their message is extra pressing now than ever.
Advocates representing almost all 50 states will share their tales and urge their Congressional delegations to assist public coverage priorities that advance kidney illness prevention, early detection, therapy, analysis and entry to transplants, together with residing organ donation.
Actor, activist, and entrepreneur Wilmer Valderrama will lead a digital briefing for Congressional employees on September 16th on the impression of kidney illness to Hispanic communities and can meet individually with Members of Congress to emphasize the significance of insurance policies that promote kidney well being. Valderrama is serving as a nationwide spokesperson for the “Are You the 33%?” marketing campaign, which is out there in English and in Spanish, and focuses on the 33 % of adults within the U.S. in danger for growing harmful, life-threatening kidney illness. Threat components embody diabetes, coronary heart illness, hypertension, weight problems and household historical past of kidney illness. Black or African American and Hispanic or Latino individuals are additionally at higher threat of growing kidney illness.
Throughout their particular person conferences with Members of Congress and employees, Kidney Affected person Summit advocates will particularly be asking policymakers to:
* Move the Complete Immunosuppressive Drug Protection for Kidney Transplant Sufferers Act (HR 5534/S.3353) which extends Medicare protection of immunosuppressive medication for kidney transplant sufferers past the 36-month cut-off at present in place to cowl drugs for the lifetime of the transplant;
* Enhance funding for kidney illness analysis and packages together with a nationwide Kidney Threat Marketing campaign to succeed in the undiagnosed who’re unaware they’re affected by kidney illness. An estimated 37 million adults within the U.S. are affected by kidney illness however 90% are unaware they even have it. Many sufferers do not study they’ve kidney illness till their kidneys have already failed. Early prognosis can assist stave off the lethal issues of this illness together with dialysis and kidney transplant; and
* Move the Dwelling Donor Safety Act (S. 511 and H.R. 1224), which prohibits insurance coverage firms from denying or limiting life, incapacity and long-term care insurance coverage to residing donors and from charging increased premiums, and likewise ensures job protections for organ donors who have to take medical go away for organ donation and restoration after surgical procedure.
The Kidney Affected person Summit is targeted on people who’ve kidney illness, dialysis sufferers, residing donors, members of the family and caregivers, all united by the affirmation and hashtag “My Kidneys, My Life”(#MyKidneysMyLife) to underscore the direct relationship between having not less than one wholesome kidney and residing in any respect. Advocates will emphasize this message throughout private conferences with their Congressional delegations on Tuesday, September 16th.
“I am repeatedly impressed by our advocates, who assist push for laws to enhance the lives of the 37 million adults within the U.S. residing with kidney illness,” mentioned Kevin Longino, CEO of the Nationwide Kidney Basis and a kidney transplant affected person. “Annually, the Kidney Affected person Summit provides a voice to sufferers, and those that take care of them, as they communicate personally to their Congressional delegations to ensure they don’t seem to be forgotten. This 12 months, greater than ever earlier than, we should stress the significance of kidney well being and the distinctive threat and burden kidney sufferers face with COVID-19. “
The Summit formally opens Tuesday, September 15th with digital coaching conferences for NKF advocates, their households, and care companions, who will use their collective experiences associated to kidney illness to champion NKF’s legislative priorities.
On Wednesday, September 16th advocates will attend digital conferences with Members of Congress and their staffs and can take part in a digital Congressional briefing, “Kidney Well being and the Hispanic Group: Are You the 33%?” from 12:30 to 1:30 pm EST that includes Wilmer Valderrama, Sylvia E. Rosas, MD, MSCE, nephrologist and epidemiologist on the Joslin Diabetes Middle and the Beth Israel Deaconess Hospital in Boston, MA, Director of the Latino Kidney Clinic at Joslin Diabetes Middle and Affiliate Professor of Drugs at Harvard Medical Faculty; and affected person advocate Maria Grijalva, kidney transplant recipient from California.
Kidney Illness Information
In the USA, 37 million adults are estimated to have power kidney disease–and roughly 90 % do not know they’ve it. 1 in three adults within the U.S. are in danger for power kidney illness. Threat components for kidney illness embody: diabetes, hypertension, coronary heart illness, weight problems, and household historical past. Individuals of Black or African American, Hispanic or Latino, American Indian or Alaska Native, Asian American, or Native Hawaiian or Different Pacific Islander descent are at elevated threat for growing the illness. Blacks or African Individuals are virtually four instances extra doubtless than White Individuals to have kidney failure. Hispanics are 1.three instances extra doubtless than non-Hispanics to have kidney failure.