By creator to www.leeds-live.co.uk
A determined Leeds mom has taken to Fb to discover a kidney donor for her daughter who was born with a uncommon dysfunction.
Jessica Kemp, 33, is battling to discover a kidney donor for her daughter Emily Atkinson, who was born with a uncommon genetic dysfunction referred to as Cystinosis – a situation solely recognized two or thrice a 12 months within the UK.
The illness is attributable to the break down of an amino acid referred to as cystine. The build-up of the acid causes cystine crystals to kind in organs within the physique, beginning within the kidney and eyes earlier than spreading to the pancreas, muscle tissues and white blood cells.
In line with the Cystinosis Foundation, the unfold of the crystals could cause kidney failure.
Emily, who was recognized with the illness at 18-months-old, must have a kidney transplant – or she shall be left to depend on dialysis for the remainder of her life.
Resulting from well being issues, Jessica, from Belle Isle, is not in a position to donate her kidney and is now interesting for a donor for her daughter.
A possible donor would must be within the B blood group, below 60 years outdated, a wholesome weight and be a non-smoker.
Chatting with LeedsLive, Jessica mentioned: “The surgeon mentioned if we will discover a match, we’d know after we can get a transparent date for the transplant. If not, we’d have to attend for a deceased donor however medical doctors advocate a dwelling one as a result of there’s extra probability of it lasting longer.
“With out the transplant, she’s going to get much more drained and he or she might need to go on dialysis.
“We (her household) are all in the identical blood group however I can’t do it due to underlying well being circumstances. My dad had supplied however he’s over 60. My neighbour wished to do it however she’s the fallacious blood group.
“If anybody is keen to assist, we shall be without end grateful.
“The transplant gained’t treatment Emily however it might assist her to stay longer.”
Emily’s sister Poppy, 10, was additionally born with the identical situation, which impacts 2,000 individuals globally. Nonetheless, Poppy underwent transplant surgical procedure in January this 12 months after her father Darren Atkinson donated his personal kidney.
Poppy had the surgical procedure first as her kidney operate was decrease than her sister’s.
Each day, the ladies must take drugs each six hours and so they additionally must have eye drops twice a day to assist break down Cystine crystals of their eyes – the build-up of the crystals causes sensitivity to gentle, with out the attention drops they may go blind.
Resulting from coronavirus, the household has been shielding as a result of Poppy is now extra susceptible however she is now doing nicely.
Jessica added: “Since posting on Fb we have had a number of presents. I’ve bought 9 individuals inboxing me with the identical blood group.
“Poppy has been doing so wonderful because the surgical procedure, she has added on weight and her dad’s been wonderful as nicely.
“Emily is a bit anxious in regards to the ache however she is aware of she must have the transplant.”
If you wish to assist Emily or know anybody who can you may get in contact with Jessica through firstname.lastname@example.org
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