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WASHINGTON, July 22, 2020 /PRNewswire/ — The American Affiliation of Kidney Sufferers (AAKP), the biggest unbiased kidney affected person group within the USA, and strategic companion George Washington College (GW) College of Medication & Well being Sciences (SMHS) shattered their digital engagement file with their second annual International Summit, “International Kidney Improvements – Increasing Affected person Decisions & Outcomes,” hosted July 16-17, 2020. The International Kidney Improvements Summit has turn out to be the world’s largest patient-led kidney innovation convention.
The Summit engaged individuals in over 70 nations and included over 20 particular medical and affected person professional periods on: COVID-19 impacts on the kidney and kidney sufferers; synthetic intelligence and early illness analysis; larger variety in medical trials; precision medication; genetic situations resembling APOL1; wearable and synthetic implantable units; and developments in dwelling dialysis care. Tens of 1000’s of sufferers, medical trial consultants, pharmaceutical researchers, medical professionals, and coverage leaders worldwide participated within the digital Summit.
The Summit is a part of AAKP’s Decade of the Kidney™, a strategic ten-year world innovation and collaborative initiative introduced final yr upon the signing of the historic bipartisan White Home Executive Order on Advancing American Kidney Health. AAKP is absolutely dedicated to extending the lives of kidney sufferers via breakthrough applied sciences and scalable options that transcend establishment kidney care, particularly outdated dialysis units.
The assembly was opened by Dr. Griffin Rodgers, Director of the Nationwide Institute of Diabetes and Digestive and Kidney Illnesses (NIDDK) and Chief of the Molecular and Scientific Hematology Department on the U.S. Nationwide Institutes of Well being (NIH). Dr. Rodgers is a global voice for affected person inclusion in analysis and innovation, a analysis investigator, and is well known for his contributions to the event of hydroxyurea, the primary efficient and FDA-approved remedy for sickle cell anemia. Dr. Rodgers is the recipient of the 2018 President’s Medal from the American Society of Nephrology (ASN) and a member of the American Board of Inside Medication (ABIM) Board of Administrators. Watch Dr. Rodgers’ remarks through the International Summit.
AAKP President Richard Knight, a 14-year kidney transplant recipient, said, “Kidney illness is a devastating illness that’s quickly increasing and negatively impacting sufferers, households, and economies all through the world. Future improvements in kidney medication rely on larger affected person engagement via absolutely inclusive medical trials and analysis, and the GW College of Medication & Well being Sciences is a worldwide chief on this area. I thank Dean Dr. Barbara Bass and Dr. Dominic Raj for his or her respect for sufferers and their efforts to unite sufferers and clinicians within the struggle in opposition to all kidney ailments.” Knight serves on the NIH/NIDDK Advisory Council, is Co-Chair of the Strategic Plan Stakeholder Engagement Subgroup, and Co-Chair of the Group Engagement Committee for the Kidney Precision Medication Challenge (KPMP). Knight is a nationally identified kidney advocacy leader.
Dr. Dominic Raj, Co-Chair of the International Summit and Professor of Medication and Chief of the Division of Kidney Illnesses and Hypertension for GW SMHS, said, “Excellence isn’t an accident, however a mark of persistence and teamwork. Two nice establishments with a synergistic objective partnered to take this assembly to the Summit, powered by the motivating spirit of kidney sufferers. This yr’s Summit showcased not solely the dire want for revolutionary discoveries and affected person engagement, but in addition the numerous progress made within the world enviornment within the area of nephrology.”
Paul T. Conway, Co-Chair of the International Summit and AAKP Chair of Coverage and International Affairs, mentioned, “AAKP and our pal Dr. Dominic Raj designed the International Summit on Kidney Improvements to be a definite worldwide occasion aimed toward accelerating cooperation amongst sufferers, researchers, clinicians, and coverage professionals. Kidney affected person shoppers worldwide demand far larger care alternative and are effectively conscious of the distinctive worth their affected person choice info has amongst innovation leaders driving the subsequent era of diagnostics, units, and biologics. AAKP is ready to work with sufferers worldwide to defend and advance the concepts of brave innovation leaders via regulatory, legislative, and cost processes to unravel the issue of kidney illness.” Conway is a 23-year kidney transplant recipient and a former dwelling peritoneal dialysis affected person. He serves on the NIH/NIDDK Exterior Professional Panel for the KPMP, is a member of the ABIM Nephrology Specialty Board, and a Affected person Voice Editor for The Clinical Journal of the American Society of Nephrology (CJASN).
Knight and Conway are recipients of the 2017 ASN President’s Medal. Throughout the International Summit, AAKP introduced a strategic partnership with the Renal Affected person Help Group (RPSG), a United Kingdom (UK) worldwide evidence-based affected person group. The 2 organizations are dedicated to accelerating hyperlinks amongst kidney sufferers worldwide to raise affected person insights amongst a global community of researchers, medical trial consultants, innovators, firms, and authorities leaders. This ground-breaking announcement is the primary of its sort within the kidney affected person group and indicators widening assist for an International Kidney Consortium.
All 2020 International Summit shows are now available OnDemand and can proceed to achieve tens of 1000’s of extra viewers the world over to extend the AAKP and GW SMHS attain of this yr’s International Summit content material. The Inaugural AAKP/GW occasion in 2019 engaged simply over 50 nations and a mixed in-person and worldwide viewers exceeding 20,000.
AAKP and GW SMHS thanks its 2020 International Summit sponsors: Amgen, Inc.; CareDx, Inc.; Natera; Eurofins Transplant Genomics; Outset Medical; and Retrophin. Info on the 2021 International Summit shall be listed at https://aakp.org/programs-and-events/2nd-annual-global-summit-global-kidney-innovations-expanding-patient-choices-outcomes/ because it turns into accessible.
In regards to the American Affiliation of Kidney Sufferers (AAKP): AAKP is among the many strongest world advocates for kidney affected person shopper care alternative and remedy innovation. From 1969-1973, AAKP sufferers led the hassle within the U.S. Congress, alongside senior White Home officers, to ascertain the Finish Stage Renal Illness Program, which has saved over one million lives via fashionable dialysis protection. Since 2018, AAKP has carried out the biggest digital kidney voter registration drive in America, the “I am a Kidney Voter” campaign, which has registered sufferers in each state. For extra info, go to www.aakp.org. Comply with AAKP on social media: Facebook @kidneypatient and Twitter @kidneypatients.
In regards to the GW College of Medication and Well being Sciences: Based in 1824, the GW College of Medication and Well being Sciences (SMHS) was the primary medical college within the nation’s capital and is the 11th oldest within the nation. Working collectively in our nation’s capital, with integrity and resolve, the GW SMHS is dedicated to enhancing the well being and well-being of our native, nationwide, and world communities. Go to its web site at smhs.gwu.edu.
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SOURCE American Affiliation of Kidney Sufferers
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