By writer to www.chronicleonline.com
So long as there’s Reese’s Items, all the things is 2 thumbs up in Kinsey Lynn Bogart’s world.
“I loooooovvvve them!” she instructed a Chronicle reporter, “particularly in Dairy Queen Blizzards.”
In her subsequent breath, she mentioned, “It’s been actually powerful currently.”
As an toddler, Kinsey was identified with Atypical Hemolytic Uremic Syndrome, characterised by the breakdown of crimson blood cells, which destroyed her kidneys.
Nevertheless, they’ve since found the AHUS was a misdiagnosis and a second genetic work-up revealed a uncommon gene mutation known as LRBA gene mutation, which is simply starting to be studied.
Kinsey additionally has extreme cardiomyopathy, an enlargement of the left ventricle, limiting the quantity of blood her coronary heart can pump out.
Plus, she has autism, ADHD and a few studying difficulties.
Kinsey is the daughter of Holly and Damon Bogart — Damon, alongside along with his brothers Brady, Ryan, Nathan and Derrick, dominated the Sports activities sections of the native newspapers overlaying Citrus County within the late 1980s and early 1990s.
Since 2004, the Chronicle has adopted the now-17-year-old, who lives together with her mother and pop in Belleview.
“Kinsey is sophisticated,” Holly Bogart mentioned.
Not a lot within the methods the typical 17-year-old is sophisticated, however medically sophisticated.
In 2004, Kinsey spent 12 weeks within the hospital. Her kidneys failed, her liver failed and her physique temperature couldn’t regulate. At this level, she was on dialysis, was present process steady blood transfusions and was wrapped in a warming blanket to maintain her temperature up.
“Fourth of July weekend we have been instructed to brace for the worst, as there was nothing else the medical doctors might do — essentially the most horrific information a father or mother might hear, however our first miracle was about to occur,” Holly wrote on their GoFundMe web page, “Kinsey’s Quest for a Kidney Transplant.”
“As folks of religion, we reached out to our group to wish for our daughter. We constantly prayed, and 24 hours later, Kinsey started to enhance and he or she recovered, however her kidney operate remained impaired,” Holly mentioned.
By age 5, Kinsey had undergone 17 procedures and surgical procedures and was on nightly dialysis till she had a kidney transplant at age 12.
When she was 8, she had giggled when she shared that she had by no means peed, besides when she was a child, and that she was wanting ahead to that when she would lastly have a transplant.
She bought the prospect to make use of the bathroom like most different little women, however the transplant failed.
After somewhat greater than two years, Kinsey returned to dialysis, however this time not nightly at residence.
This time they journey 3 times every week to UF Well being Shands Kids’s Hospital in Gainesville, a great 60 or so miles from residence in Belleview, which she continues to do in the present day.
For a variety of years, Holly labored as a faculty nurse and Kinsey additionally attended college. Final yr, nonetheless, two episodes of respiratory misery landed Kinsey within the hospital. After the second, the day after Christmas 2019, Kinsey was positioned on hospital homebound studying at residence and hasn’t returned to highschool since then.
At the moment Holly stop her job to be residence together with her daughter.
“It’s been a giant life change for us — all the things has modified,” Holly mentioned.
When dialysis began once more, the household went again to ready and praying for one more kidney transplant.
In August, they acquired disappointing information from the physician who heads the Shands pediatric transplant group: As a result of Kinsey is so medically sophisticated, he wouldn’t function on her once more and denied her to be positioned on the transplant record at Shands.
“I’m too dangerous,” Kinsey mentioned.
Now their hope is that she might be accepted for a transplant at Jackson Memorial Hospital in Miami.
“We’re not ever going to surrender on her,” Holly mentioned. “The nephrology group feels the identical method we do; they don’t need to quit both.
“She’s sophisticated — she’s been sophisticated her entire life,” she mentioned. “We imagine she’s solely right here by the grace of God, and we’ve all the time put our belief in him, regardless of the scenario.”
She added that Kinsey, as little as she is, has unbelievable internal power, is “extremely sort and is aware of no stranger and has a method of bringing folks into her life that makes folks really feel beloved and necessary.”
“Her positivity and power makes us very proud,” she mentioned. “She is our miracle.”
The 17th annual Kinsey Lynn Bogart Profit Golf Event, sponsored by Mike Scott Plumbing, will happen Oct. 30 at Candler Hills Golf Membership in Ocala.
Annually, the match raises cash to assist offset Kinsey’s medical bills.
For data, go to www.fb/caringforkinsey.com