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As COVID-19 creates more kidney patients, our message to lawmakers is extra pressing than ever. Advocates representing almost all 50 states will share their tales and urge Members of Congress to advance kidney illness prevention, early detection, remedy, analysis, and entry to transplants, together with dwelling organ donation. NKF patient-advocates will probably be joined by advocates from Home Dialyzors United, Nephcure Kidney International, the Alport Syndrome Foundation, IGA Nephropathy Foundation of America, and PKD Foundation to advance public insurance policies that can promote higher kidney well being for all Individuals.
Particularly, advocates will probably be asking policymakers to: improve federal funding in applications that promote kidney illness analysis, consciousness, and early detection; assist the Living Donor Protection Act (S. 377 and HR 1255), which might prohibit discrimination in opposition to dwelling donors in life, incapacity, and long-term care insurance coverage; and assist the Protecting all Cheap Bills (CARE) for Dwelling Dialysis Act to eradicate boundaries to accessing all remedy choices for dialysis sufferers.
Wilmer Valderrama will as soon as once more share his personal story with lawmakers of getting shut relations with each diabetes and hypertension, two of the most typical danger elements for growing kidney illness. “1 in three adults within the U.S. are in danger for growing kidney illness and most aren’t conscious that having diabetes, hypertension, coronary heart illness, weight problems or household historical past of kidney illness will increase their danger of growing it. That’s the reason I’m proud to lend my voice to selling consciousness and early detection of kidney illness, particularly in historically under-served communities.”
A pre-summit kickoff consisting of digital coaching conferences was held on Thursday, February 25 to empower advocates, their households, and care companions and assist them greatest use their collective voices and experiences associated to kidney illness to champion NKF legislative priorities.
“The Kidney Affected person Summit provides sufferers and advocates a chance to battle passionately for laws that improves the lives of these with kidney illness,” mentioned Kevin Longino, CEO of the Nationwide Kidney Basis and a kidney transplant affected person. “There are 37 million adults within the U.S. dwelling with kidney illness. This 12 months, greater than ever earlier than, we should emphasize the significance of fine kidney well being and the distinctive danger and burden kidney sufferers face with COVID-19.”
The Kidney Affected person Summit is targeted on people who’ve kidney illness, dialysis sufferers, dwelling donors, relations and care companions, all united by the affirmation and hashtag “My Kidneys, My Life“ (#MyKidneysMyLife) to underscore the direct relationship between having at the very least one wholesome kidney and dwelling in any respect. Advocates will emphasize this message throughout private conferences with their Congressional delegations on Tuesday, March 2nd.
Kidney Illness Info
In the US, 37 million adults are estimated to have chronic kidney disease—and roughly 90 p.c do not know they’ve it. 1 in three adults within the U.S. are in danger for power kidney illness. Threat elements for kidney illness embody: diabetes, high blood pressure, heart disease, obesity, and household historical past. Individuals of Black or African American, Hispanic or Latino, American Indian or Alaska Native, Asian American, or Native Hawaiian or Different Pacific Islander descent are at elevated danger for growing the illness. Blacks or African Individuals are virtually four instances extra seemingly than White Individuals to have kidney failure. Hispanics are 1.three instances extra seemingly than non-Hispanics to have kidney failure.
The Nationwide Kidney Basis (NKF) is the biggest, most complete, and longstanding patient-centric group devoted to the attention, prevention, and remedy of kidney illness within the U.S. For extra details about NKF, go to www.kidney.org.
SOURCE Nationwide Kidney Basis
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