By writer to boksburgadvertiser.co.za
Santie Botha and Conor van Baalen spending high quality time collectively after not having the ability to see one another for 2 months because of the pandemic.
A grandmother from Sunward Park, Santie Botha, is devastated after receiving the information that her seven-year-old grandson’s uncommon kidney illness returned after his profitable kidney transplant earlier this yr.
At simply 22 months outdated, Conor van Baalen turned extraordinarily unwell and after two months of medical assessments he went for a kidney biopsy when he was 24 months outdated. Conor was later recognized with focal segmental glomerular sclerosis (FSGS), a uncommon kidney illness which is commonly tough to deal with, affecting every affected person in a different way.
FSGS shouldn’t be a single illness however slightly a sample of kidney injury and is likely one of the commonest causes of nephrotic syndrome, particularly in youngsters and adolescents. Conor’s nephrologist tried a number of remedies and by the tip of 2017, medical doctors confirmed that Conor’s FSGS was steroid resistant.
The one factor that would assist Conor was a kidney transplant. His dad and mom, Hennie and Santie, immediately started the hunt to discover a kidney for Conor. A few yr later, Danie de Moist overheard Hennie informing folks how urgently Conor is in want of a kidney. Figuring out the household via wrestling, with the van Baalen household belonging to the Boksburg Wrestling Membership in East Gauteng, Danie approached Hennie and was decided to donate his kidney to the teen.
“Phrases can not categorical how grateful we’re that Danie was prepared to donate his kidney to Conor. We all know he needed to make sacrifices for the operation to happen and it really means the world to us.
“Conor is doing nicely in the intervening time due to the kidney transplant. His abdomen continues to be a little bit bit swollen, however he’s a lot more healthy and extra energetic. It additionally helps so much that he doesn’t must get dialysis for 12 hours a day anymore. Nonetheless, he nonetheless must take medicine and go for normal blood assessments,”Conor’s grandmother defined.
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Although the operation was successful, the household lately came upon the FSGS has, sadly, returned and Conor will obtain additional remedy.
“This implies we’re mainly again to sq. one. The illness goes to assault his kidneys, which may result in kidney failure sooner or later. The prognosis is regarding and the way in which ahead is a bit unsure. A kidney biopsy will now decide if the brand new kidneys are broken already,” Santie added.
She highlighted that the lockdown was tough for her as she was unable to see her grandson whereas self-isolating.
“It was dreadful not to have the ability to see him for 2 months, particularly as a result of I’m used to helping him together with his dialysis at our home on Thursdays. His grandfather and I commonly video known as him, however it’s simply not the identical,” Conor’s grandma defined.
In line with his mom, the boy is doing nicely in the course of the lockdown as he’s used to staying at dwelling.
“Conor’s way of thinking was good in the course of the lockdown and he loved spending time together with his household. He’s additionally doing schoolwork from Laerskool Elspark the place his twin brother, Kody, is attending college,” his mom stated.
She expressed her gratitude in the direction of the neighborhood of Boksburg for supporting the boy throughout this time.
“Conor may be from Brakpan, however he’s actually not a stranger to Boksburg as we obtained unimaginable assist from the neighborhood. We’re extraordinarily grateful for everyone who assisted us financially or supported us throughout this time. We realise the lockdown affected everyone, and we really admire each contribution,” Conor’s mom stated.
The involved mom identified they’re nonetheless in want of funds to assist with the price of the transplant and Conor’s remedy. The household’s medical assist solely coated about 39 per cent of the process, which prices roughly R600 000. Anyone prepared to help the household might contact Santie (grandmother) on 082 959 0753 or go to his Fb web page (https://net.fb.com/hopeforconor/?_rdc=1&_rdr).
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