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WASHINGTON, July 7, 2020 /PRNewswire/ — The American Affiliation of Kidney Sufferers (AAKP), the most important kidney affected person group in America and the impartial voice for kidney sufferers, introduced as we speak the launch of its “AAKP…It is on Us!” initiative which waives registration charges for all 2020 AAKP digital occasions. The strategic motion was taken to extend affected person and kidney skilled entry to among the prime specialists on coronavirus and kidney illness in addition to leaders in coverage and remedy improvements.
“Throughout these unprecedented instances, as kidney sufferers, we perceive the difficulties professionals and sufferers throughout the nation are enduring. AAKP firmly believes well timed and prime quality well being care schooling needs to be instantly accessible to frontline professionals and the sufferers they defend. We thank our donors and sponsors throughout the globe for his or her generosity in permitting us to offer this service and experience to all who’re ,” Richard Knight said, AAKP president and 14-year kidney transplant recipient. Knight is concerned in a number of kidney collaboratives and serves on the Nationwide Institutes of Well being/Nationwide Institute of Diabetes and Digestive and Kidney Ailments (NIH/NIDDK) because the co-chair of the Neighborhood Engagement Committee for Kidney Precision Medication Program (KPMP). Lately, he has turn out to be extra engaged in offering methods to business companions in rising minority participation in scientific trials.
- AAKP 2nd Annual World Summit: World Kidney Improvements – Increasing Affected person Selections & Outcomes, hosted July 16-17, 2020. Co-hosted by AAKP and the George Washington College College of Medication & Well being Sciences. This occasion options specialists on COVID-19 with direct expertise managing illness impacts amongst kidney sufferers, in addition to main influencers for improvements in kidney illness detection, remedy, and gadgets. For added particulars, the summit agenda, and to register for this digital occasion, click here. The occasion is at present sponsored by Amgen, Inc., CareDx, Inc., Natera, Outset Medical, and Retrophin. For data on sponsorship alternatives, please contact Erin Kahle, [email protected]. The 2019 World Summit attracted a worldwide viewers of over 10,000 viewers throughout greater than 50 nations.
- AAKP 3rd Annual Washington, D.C., Public Coverage Summit, hosted August 6, 2020. The occasion will assessment prime kidney coverage points underneath dialogue within the nation’s capitol – together with a assessment of the progress and pushback related to the bipartisan July 2019 Government Order on Advancing American Kidney Well being Initiative. The Government Order is the primary chapter in what AAKP has referred to as The Decade of the Kidney™ – a interval by which established order kidney care will finish and affected person customers and their innovation allies will drive wider care alternative and remedy choices that align with affected person aspirations. For added particulars and to register for this digital occasion, click here. Present occasion sponsors embody Amgen, Inc., Aurinia Prescribed drugs, Bayer, CareDx, Inc., Horizon Therapeutics, and Mallinckrodt Prescribed drugs. For data on sponsorship alternatives, please contact Erin Kahle, [email protected].
- AAKP 45th Annual Nationwide Affected person Assembly: Affected person Voice, Affected person Selection hosted September 11-12, 2020. AAKP’s Nationwide Affected person Assembly is the most important kidney affected person assembly in America. The occasion includes a numerous lineup of audio system crossing all sectors of the kidney group, together with the highest influencers in kidney care from federal authorities, medical professionals, academia, non-public business, and non-profit skilled organizations, together with a digital exhibit corridor which is able to permit participates to interact with varied kidney-related firms and organizations. For added particulars and to register for this digital occasion, click here. For data on sponsorship/exhibiting alternatives and digital affected person roundtables, please contact Erin Kahle, [email protected].
Paul T. Conway, Chair of AAKP Coverage and World Affairs and a 23-year transplant recipient, said, “AAKP has drastically expanded and refined our capacities to share knowledgeable information on a world and nationwide foundation over the previous a number of years. We’re honored to deploy our digital applied sciences, social platforms, and knowledge analytics to disseminate breaking information and illness insights to each sufferers and professionals at zero value to occasion registrants. We look ahead to inviting new audiences to enlist in our international combat to incorporate kidney sufferers, and the various numerous communities they symbolize, extra totally into kidney illness analysis initiatives and scientific trials.” Conway can be concerned with the the Nationwide Institutes of Well being/Nationwide Institute of Diabetes and Digestive and Kidney Ailments (NIH/NIDDK) Kidney Precision Medication Program (KPMP) as a member of its Exterior Professional Panel and has supplied direct affected person insights to a number of federal businesses, together with as a reviewer for the Division of Protection’s Congressionally Directed Medical Analysis Program (DOD/CDMRP).
To study extra about AAKP’s upcoming digital occasions throughout 2020 and to register, go to https://aakp.org/programs-and-events/about-programs-and-events/.
In regards to the American Affiliation of Kidney Sufferers (AAKP): AAKP is among the many strongest advocates for kidney affected person client care alternative and remedy innovation. From 1969-1973, AAKP sufferers led the trouble within the U.S. Congress, alongside senior White Home officers, to ascertain the Finish Stage Renal Illness Program, which has saved over one million lives by means of fashionable dialysis protection. AAKP digital platforms and social networks are internationally identified for his or her influence. In 2019, AAKP introduced the beginning of the Decade of the Kidney™ upon the signing of the Government Order on Advancing American Kidney Well being Initiative. Since 2018, AAKP has performed the most important digital kidney voter registration drive within the nation, the “I am a Kidney Voter” campaign, which has registered sufferers in each state. AAKP fights for insurance policies to extend early illness detection, enhance kidney transplantation and pre-emptive transplantation, defend the affected person/doctor relationship, promote analysis and innovation, and get rid of limitations for affected person entry to out there remedy choices.
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SOURCE American Affiliation of Kidney Sufferers
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