By writer to www.sudbury.com
‘She is now on dialysis wherever from 13 hours to 15 hours an evening, and it’s actually beginning to have an effect on her high quality of life,’ says her grandmother
Dec. 11 is meant to carry the last word early Christmas reward for younger Addison Behrndt within the type of a brand new kidney.
Six-year-old Addi has Sensenbrenner Syndrome, an especially uncommon illness that has affected her organs.
“We hope the third time’s the allure,” mentioned Addi’s grandmother, Andrea Behrndt.
Addi’s kidney transplant was supposed to happen in January this year. It didn’t happen. and attributable to medical causes, she was not suitable with the donor who was prepared to offer Addi a kidney.
They discovered a second donor, although, and the transplant was speculated to happen in October. Nonetheless, it was postponed as Addi was experiencing coronary heart points on the time, her mother mentioned.
Now, the transplant has been finalized for Dec. 11.
“We’re actually hoping this could go ahead and get a brand new kidney in her, as a result of we’re beginning to see points with issues like her coronary heart from her blood stress being so excessive, leading to longer classes of dialysis,” mentioned Andrea. “She is now on dialysis wherever from 13 hours to 15 hours an evening, and it’s actually beginning to have an effect on her high quality of life.”
Andrea mentioned her granddaughter continues to be the identical little lady she has been by way of the entire troubles she is experiencing.
“Addi continues to be Addi, nonetheless humorous, nonetheless foolish, nonetheless so Addi,” she mentioned.
Addi is heading to Sick Children in Toronto on Nov. 30 for pre-admission and to make sure the echocardiogram is evident, Andrea mentioned. Then she is going to return on Dec. 9. They’ll do a COVID screening, then admit her.
After the transplant on Dec. 11, Addi will spend just a few weeks within the hospital.
“So we’re taking a look at Christmas as Sick Children,” mentioned Andrea. “ That’s tremendous. We’d like a kidney. Nothing else issues. This has been occurring for a yr now, and it’s simply time.”
After that, they should keep in Toronto wherever from three to 6 month, relying on how Addi’s physique reacts to the brand new kidney, she mentioned.
“It’s nonetheless a protracted street forward of us,” she mentioned.
The household will seemingly keep in a resort and at Ronald McDonald Home.
“We simply discovered final week that the transplant was going to go forward on Dec. 11, so we now have to determine lodging,” she mentioned.
She mentioned there’s a little bit of cash left over from the GoFundMe marketing campaign, Help Addi and her family through her transplant, which has raised greater than $17,000. Nonetheless, Andrea mentioned she would not know if it’s going to be sufficient to cowl their bills, and is hopeful Sudburians can as soon as once more assist out by donating.
“It’s hectic,” she mentioned.
Andrea and Addi are additionally mourning the lack of one in every of Addi’s largest supporters.
Addi’s nice grandmother, Norma, Andrea’s mom, immediately handed away two weeks in the past. She fell and broke her hip, then handed away 9 days later.
“Addi is simply devastated, she actually wished my mother to be right here for the transplant,” Andrea mentioned. “It is simply been a tough few months. A tough yr, however the previous few months have been actually unhealthy.”
Final yr, Sudbury.com shocked Addi as one of many recipients of our 12 Days of Christmas. To take a look at that video, click here.
You’ll be able to observe Addison’s journey by following Army for Addison on Facebook.
— to www.sudbury.com
