By writer to www.saltwire.com
YARMOUTH, NS – The mom of a child from Yarmouth County can’t ever think about leaving her son’s aspect as she and her household await a desperately-needed liver transplant for her son Owen.
“I can’t depart him. I couldn’t think about being so little and waking up in a wierd place and totally different individuals poking you,” says Paige Comeau. “He wants my assist 100 p.c so I’m by his aspect till that is completed. I’m ready to dwell in a hospital so long as I’ve to.”
A GoFundMe marketing campaign is underway to assist the Yarmouth County household whose child Owen is in determined want of a liver transplant.
The net fundraiser – ‘4 month old Owen needs a liver transplant now‘ – was initiated a number of weeks in the past by Owen’s dad and mom Paige Comeau and Bruce LeBlanc, who’re asking for assist to cowl the prices of journey, meals and medical bills.
“Owen was born April 30, 2021, with a situation known as biliary atresia,” reads the GoFundMe introduction. “It is a narrowing, blockage, non-existent bile ducts.
“Biliary atresia (BA) is a deadly situation, ensuing within the lack of efficient biliary drainage main invariably to liver failure and cirrhosis inside a 12 months, and it’s usually deadly inside a couple of months within the absence of corrective surgical procedure or liver transplantation,” the fundraiser goes on to elucidate.
Little Owen already had three surgical procedures at simply two months previous.
The household has been in Toronto the place Owen is being assessed for a liver transplant on the SickKids – The Hospital for Sick Youngsters.
“They stated to anticipate a 10-to-30 day keep however there’s additionally the opportunity of going again to the IWK, however Owen wouldn’t be capable to go residence. We now have to dwell within the hospital till his transplant as a result of he’s not secure,” stated Comeau in an interview.
Comeau resides within the hospital along with her son, whereas Owen’s dad Bruce is barely allowed in to go to attributable to restrictions.
Owen’s liver perform, in the meantime, has been getting worse.
“He’s developed a situation known as ascites the place meals builds on the stomach. He has to have remedy each day to attempt to launch a few of that fluid as a result of the stress builds up and makes him extraordinarily uncomfortable in ache,” Comeau says.
Getting Owen’s vitamin in a more healthy state is vital prematurely of the potential transplant. “He mainly wants double what a wholesome child does simply to perform,” his mom says.
Owen is on the transplant record for a cadaver liver and as soon as his evaluation is accomplished and it’s confirmed he’s a appropriate recipient the transplant crew will transfer ahead in that course of.
“If we will discover a dwell liver donor it hastens the method a little bit bit,” says Comeau, who have to be six months postpartum earlier than being thought-about a possible donor.
After Owen’s checks and evaluation are accomplished, his situation will probably be graded by some extent system to find out the severity.
“Who’s the sickest child will get it first,” says Comeau, including there are presently 300 individuals ready for liver transplants in Canada.
It price the household slightly below $1,500 to journey to Toronto for the evaluation. Then there will probably be journey again to the IWK in Halifax, after which again to Toronto for the transplant, so they’re $8,000 simply in journey bills alone, Comeau says.
The price to remain in a resort in Toronto for per week is $1,000 and that’s on the hospital charge, she says.
On the time this story was written, the household had set a $15,000 objective by way of the GoFundMe marketing campaign. As of the morning of Sept. 27, donations had exceeded $7,500. The GoFundMe account additionally consists of each day updates from Owen’s mom on his situation.
Comeau says there was “excellent assist from associates, household, neighborhood.”
“I’m amazed what number of occasions the submit has been shared. Even little donations add up. We’re simply so grateful that it did one thing… He’s (Bruce) lacking work,” she says.
“Actually, the very last thing I wish to fear about is cash. I simply wish to be right here for Owen and deal with what he’s going by way of and the way I may also help him be snug,” the mother says.
Comeau says she has been in touch with lots of people who’ve gone by way of such experiences, and who’ve reached out and shared their experiences, whether or not it’s for a similar situation or one thing comparable.
“With that assist, I’m very grateful. I felt alone, I didn’t know what was occurring, why it’s was occurring how widespread it was,” she says.
“I’ve obtained all the religion on the planet. All people has made me really feel 100 occasions higher about this example,” she provides.
“I actually discovered it in me to imagine, to assume optimistic, be optimistic – simply don’t deal with the what ifs, the maybes and the dangers. Perceive them, in fact, however don’t dwell on them. We spent many days not realizing what was going to occur. Crying however that doesn’t assist him. We’ve obtained to be blissful, optimistic, and present him that we’re right here for him and every part goes to be okay.”
— to www.saltwire.com