By writer to www.wfmz.com
WASHINGTON, July 17, 2020 /PRNewswire/ — The American Affiliation of Kidney Sufferers (AAKP) and the Renal Affected person Help Group (RPSG), based mostly within the United Kingdom (UK), at present introduced a partnership to speed up hyperlinks amongst kidney sufferers worldwide to raise affected person insights amongst a world community of researchers, scientific trial specialists, innovators, firms, and authorities leaders. AAKP launched their World Ambassador strategic initiative in 2019 to speed up world affected person networking and to extend curiosity for a world kidney innovation consortium as part of The Decade of the Kidney™.
The announcement got here through the 2020 Digital World Summit on Kidney Illness Innovation, a collaborative occasion between AAKP and the George Washington College Faculty of Drugs & Well being Sciences (GW SMHS). The World Summit, that includes worldwide specialists on coronavirus and kidney innovation, is being hosted nearly July 16-17, 2020. 1000’s of viewers in over 65 international locations participated the primary day of the Summit, exceeding the 2019 Inaugural World Summit. To view the 2020 Summit agenda or to register, go to https://aakp.org/programs-and-events/2nd-annual-global-summit-global-kidney-innovations-expanding-patient-choices-outcomes/.
AAKP and RPSG share joint strengths of their numerous and world memberships and extremely subtle social media and on-line communication platforms. Each organizations have a shared agenda to extend kidney affected person care alternative and the inclusion of affected person choice info (PPI) and proof within the improvement of recent kidney medication, diagnostics, and units. The RPSG has a world membership, together with, however not restricted to, the United Kingdom, United States of America, Egypt, India, Canada, Saudi Arabia, Eire, and Australia.
Richard Knight, AAKP President and a 14-year kidney transplant recipient, said, “Over the course of our 50 historical past, AAKP has supported and networked with sufferers and researchers throughout the globe. At the moment, we’re honored to formally accomplice with the RPSG to advance our shared agenda of patient-driven analysis and innovation, and to arrange affected person networks for a world consortium to combat kidney ailments.” Knight is a former legislative employees member in the US Congress and liaison to the Congressional Black Caucus. He’s a nationally recognized advocacy chief. http://bit.ly/KnightPV
Shahid Muhammad, Tutorial and Chartered Scientist from the College of the West of England (UWE), Bristol UK, and former Co-Founding father of RPSG, said, “It’s unbelievable to see greatest observe develop by means of the work of the RPSG strengthening Proof-Based mostly Apply surrounding kidney care internationally. It’s unbelievable information to see that the more moderen partnership goes forward with the AAKP, prompting sturdy UK and USA efforts. I’m happy to see that the RPSG has progressed and has expanded its partnership portfolio over time.” Mr. Muhammad served as an Worldwide Skilled Speaker and lectured on Medical Trials in Kidney Illness: Worldwide Perspective on Affected person Engagement through the first day of the 2020 Digital World Summit.
John and Vicky Gardner, Co-founders of the RPSG said, “Over the previous decade, the RPSG has been a world Proof-Based mostly Help Group, collaborating and elevating kidney illness consciousness. It’s now with nice pleasure to announce that the Renal Affected person Help Group (RPSG) and the American Affiliation for Kidney Sufferers (AAKP) are partnering to additional enhance healthcare transparency and lift schooling consciousness for ALL these going by means of kidney illness. This UK and USA partnership will probably be on the forefront.”
Paul T. Conway, AAKP Chair of Coverage and World Affairs and a 20-year kidney transplant recipient, said, “Kidney sufferers worldwide have a shared the agenda for expanded affected person shopper care alternative, absolutely consultant scientific trials, and a better valuation of affected person choice info within the improvement of recent kidney medication, units, and diagnostics. We’re dedicated to equipping sufferers and their medical professionals, no matter the place they reside or the political system beneath which they reside, with the instruments they should set up and freely advocate for innovation and improved remedies.” Conway has served in coverage roles beneath three U.S. presidents and is a Affected person Editor for the Medical Journal of the American Society of Nephrology (CJASN) (https://cjasn.asnjournals.org/content/15/7/907).
AAKP World Ambassador Vasundhara Raghavan (Dubai, United Arab Emirates) and AAKP Nationwide Ambassador Meshia Adams (USA) symbolize the RPSG group as Analysis and Directors. AAKP World Ambassador Vasundhara Raghavan will present a affected person perspective on Affected person-Pushed Transformations in World Care and Care Supply through the 2020 Digital World Summit.
In regards to the American Affiliation of Kidney Sufferers (AAKP): The AAKP is a powerful world advocate for kidney affected person shopper care alternative and therapy innovation. From 1969-1973, AAKP sufferers led the hassle within the U.S. Congress, alongside senior White Home officers, to ascertain the Finish Stage Renal Illness Program, which has saved over one million U.S. lives by means of trendy dialysis protection. In 2019, AAKP introduced the beginning of the Decade of the Kidney™ upon the signing of the White Home Govt Order on Advancing American Kidney Well being Initiative. Since 2018, AAKP has carried out the most important digital kidney voter registration drive in America, the “I am a Kidney Voter” campaign. AAKP builds coverage consensus for early illness detection; elevated kidney transplantation and pre-emptive transplantation; and safety of the affected person/doctor relationship. For extra info, go to www.aakp.org. Observe AAKP on social media at @kidneypatient on Fb and @kidneypatients on Twitter.
In regards to the Renal Affected person Help Group (RPSG): The RPSG was based in 2009 by two renal sufferers and one caregiver to assist increase Continual Kidney Illness (CKD) consciousness on a wider scale. The RPSG is an Proof-Based mostly assist group and outlined as a ‘place’ the place consciousness and analysis meet. The RPSG was short-listed as Advancing Healthcare Awards (2018) finalists. The RPSG was additionally short-listed for an Influence and Innovation Award (2018). For extra info, go to www.rpsg.org.uk.
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